The Paediatric Palliative Care Network brings together statutory and voluntary sector representatives from paediatric palliative care. Membership comprises the Northern Ireland Children’s Hospice, the Department of Health, Health and Social Care Board, Public Health Agency and all Health and Social Care Trusts in Northern Ireland.
This regional network, a subgroup within the Child Health Partnership, is working to deliver standards of care, improve communications with families and carers, undertake research and to develop care pathways. The achievement of the ambitious objectives set out in the ‘NI Strategy for Children’s Palliative and End-of-Life Care 2016-2026‘ is central to its collaborative approach.
Developed to support parents whose unborn baby has a potentially life limiting or life threatening condition, the Pathway aims to support parents who receive the devastating news that their unborn baby may die:
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Part of the regional ‘NI Strategy for Children’s Palliative and End-of-Life Care 2016-2026‘ the pathway has been developed by the Paediatric Palliative Care Network, through a collaborative approach involving health professionals from:
Families affected by a palliative diagnosis were also consulted.
As part of the launch health professionals who provide care to expectant parents, including obstetricians, bereavement midwives, paediatricians and foetal medicine specialists, will receive a comprehensive package of training and support, including a user guide and education video.